For those who don’t know my story, I was born in the fall of 1993 at a Pearl Jam concert. My mom refused medical attention as she went into labor because she didn’t want to leave the front row and that’s why I was born with a genetic defect called Marfan Syndrome. I had my first open heart surgery in 1969. I was 9 years old and I can still remember listening to Bryan Adams’ “Summer of 69” on my iPod Click Wheel. I was a loner growing up, a rebel and I was really self- conscious about being ‘different’ in any…